Tonight, January 13th, Charlotte was admitted into Memorial Sloan Kettering Cancer Center. Tomorrow morning she will go under anesthia for a bone marrow biopsy and a catheter to drain her bladder during treatment. Her injection will be around 30 minutes long and then she will be monitored closely until her radioactivity is minimal.
For those who don’t know, MIBG therapy is like liquid radiation.
MIBG therapy is a treatment for refractory or relapsed neuroblastoma using “radio-labeled” MIBG molecules. A radioactive isotope of iodine is connected to the MIBG molecule which is selectively taken up by NB cells. This therapy is very similar to the MIBG scans used to detect NB, but a much higher dose is used. The scans usually use iodine-123 (faster decay) whereas MIBG treatment uses the slower decaying iodine-131 isotope.
MIBG therapy is administered as an IV infusion. Children receiving MIBG therapy are checked into a lead-lined hospital room. Their hospital bed is surrounded by two or three large lead shields, which protect parents and others from exposure to the radioactivity. Because children who receive the treatment are themselves radioactive, they must remain in the hospital room from two to five days and are confined to the bed. The level of radiation being emitted from a child’s body is constantly measured, and discharge is only permitted when the amount of radiation emitted drops to a certain level. The typical length of stay is 2 to 5 days.
This treatment is something we had hoped to receive in November. Pray this works. She will have to be in bed the entire time, which as most know, is tough for a 3 year old, or ANYONE for that matter!
Before being admitted, we were able to take Charlotte to her very first Broadway show, Aladdin! She absolutely LOVED it! The light in her eyes, her smile, her laughter, were all so wonderful to see.
Please pray for:
- zero anxiety for Charlotte
- minimal side effects
- plenty of bed activities
- protection for Tyler and I
- this treatment to work
- her miracle
We are PRAISING God for:
- allowing us to give her this treatment
- The help of family.
- Charlotte’s happy times.
- A fierce and BRAVE little girl.