Graced By Charlotte

God is Bigger than Neuroblastoma

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June 4th

06.18.2015 by Jacqueline York // Leave a Comment

The blood and platelet transfusion went well last night. Charlotte slept through most of it! She FINALLY got some rest, and although it was medicated rest, I’ll take it!! My poor girl had a rough day of irritability and wanting to go home. They are managing her pain with morphine. Although it’s not taking it completely away, it’s helping.

Her hair has really begun falling out, Handfuls at a time. While it’s a positive sign that the chemo is working, it’s still tough. I worry about what she will feel or think. It breaks my heart at times. Not because my little girl won’t have hair, but because she doesn’t completely understand why we won’t be able to braid her hair like Elsa or wear all of her fancy bows. Today I combed her hair and braided it one last time for a while. I pray that this is something she takes with ease and is okay with.

She is in bed most of the day, with no desire to walk around. Tyler and I have taken turns making her walk. She isn’t too happy about it but in the long run she will be thankful.

Tyler gave me a little break to grab some fresh air, of course while I was gone I was worried about her. She has been completely attached to me since all of this. But after returning, I learned she did great!! They shot baskets in the trash and played some. It was so great to hear!! I pray for good times often, even if it’s just for a few minutes.

One of the side effects to this chemo is sores in the mouth. Well poor Charlotte has them in her mouth, throat, and possibly her tummy. She struggles to eat anything. Organic Greek raspberry yogurt seems to be the only thing she wants, it even trumps ice cream and milkshakes!!

We are taking this day by day, praising the Lord for our good times and praying fervently for total healing.

Your continued support and words of encouragement are amazing!

Remembering Psalm 40 throughout this time

June4th

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