I know everyone has been eagerly awaiting scan results, I was too. I was just so ready to shout it from the rooftops!
Unfortunately, Charlotte’s scans are not as we had hoped. Her CT scan showed minimal growth in two spots near her ribs and 1 spot near her spine, this news was a punch to my stomach. I don’t know what to think, how to feel, or what to do. I was so certain that this treatment would finally be the ONE, it wasn’t.
Maybe I put too much hope in this.
Even with this news, I can’t help but look at my darling daughter and feel peace. She is happy right now. Full of energy and feeling great. I know God is giving us all of these wonderful, happy times and I can only pray they will continue,
Charlotte’s trip to the beach!
The doctors have discussed Charlotte’s case at the tumor board. The growth isn’t enough to disqualify her from her current trial or to even be considered a progression. (PRAISE GOD) More good news is that the left side of her bone marrow is clear while the right side is showing ganglio or matured disease!! Thank God!
Even though this antibody hasn’t cleared her yet, it’s doing enough for her to continue with this treatment.
We will do a spinal MRI and PET scan to get a closer look at the growths and come up with a plan. This may include surgery to remove 2 ribs and radiation, surgery to remove the soft tissue disease and leave the bones (source of the disease) and radiation, or radiation alone.
We are home for now and will return to NYC in the beginning of July.
Flapjack Friday at the hospital, YES those are pink pancakes!
Enjoying polenta cake with Karma
Thank you for your support and continued prayers, please don’t ever stop!
Please pray for:
Wise decisions from the doctors
Clear guidance for us as parents
Charlotte’s friends who are battling this monster
The new growths to die
Charlotte’s miracle
Praising God for
A weight gain of 5+ pounds
Your support
A good bone marrow report
List of treatment options
Charlotte’s happy times
“Did I not tell you that if you believed, you would see the glory of God?” John 11:40-This is when Jesus raised Lazarus from the dead, one of his many miracles that he has performed. We are believing!
“Find rest, O my soul, in God alone; my hope comes from him. He alone is my rock and my salvation; he is my fortress, I will not be shaken.” Psalm 62;5,6
This is RJ, their family is very dear to us. I ask that all of you pray for him.
This monstrous cancer is taking over and he NEEDS his miracle NOW more than ever!! We love you Sy family!!
We’re in continuous prayer for your family and Charlotte’s miracle. Praying that God guides you and the doctors in the right treatment path. Praying for the Sy family!
You and your dear Charlotte have been in my thoughts and prayers often. As I was reading this a book came to mind that I read while in training for yoga therapy for cancer & chronic illness, something I’ve now practiced with cancer patients for 3 years. The book is called, “Anti-Cancer” by David Servin-Shreiber. David, a doctor, was diagnosed with brain cancer in his late 20’s, he was treated and told to go on with his life, and like cancer does, it came back. He wanted to know why some people (even small percentages) go on living with cancer for extended time periods (decades upon decades, sometimes even dying from natural causes) when the odds are slim to none…it’s fascinating. This isn’t a woo-woo book, this is very science-based, but it talks about all the different ways you can help Charlotte create the best terrain for her body to halt the progression. I know there are probably a million people giving you unwarranted advice, but if you ever want to talk, I’d be happy to share everything I know from a different “healing” perspective. All my best, xo, Donielle
Our hearts and prayers go out to Charlotte and Mommy, Daddy, sister and grandparents. The battle persists for her needs, as well as with you, Jacqueline and your husband. We will continue to pray for all. And, will include RJ’s battle, as well.
Beautiful little sweet Charlotte. So precious.❤️ Praying and praying she will be cured. Thanks for sharing with all the sweet pictures, and the update. Enjoy your time at home with those two precious girls.
Continued prayers. Keep the faith! You all are amazing. So thankful brave Charlotte is having good days! I’m believing with you that there will be many more.
Dear York family, we pray for you all regularly and will continue to do so. At the top of our list is Charlotte’s Miracle and we will add RJ’s Miracle as well. May God Bless you in mighty ways. Hugs!
We’re in continuous prayer for your family and Charlotte’s miracle. Praying that God guides you and the doctors in the right treatment path. Praying for the Sy family!
Hi York fam,
You and your dear Charlotte have been in my thoughts and prayers often. As I was reading this a book came to mind that I read while in training for yoga therapy for cancer & chronic illness, something I’ve now practiced with cancer patients for 3 years. The book is called, “Anti-Cancer” by David Servin-Shreiber. David, a doctor, was diagnosed with brain cancer in his late 20’s, he was treated and told to go on with his life, and like cancer does, it came back. He wanted to know why some people (even small percentages) go on living with cancer for extended time periods (decades upon decades, sometimes even dying from natural causes) when the odds are slim to none…it’s fascinating. This isn’t a woo-woo book, this is very science-based, but it talks about all the different ways you can help Charlotte create the best terrain for her body to halt the progression. I know there are probably a million people giving you unwarranted advice, but if you ever want to talk, I’d be happy to share everything I know from a different “healing” perspective. All my best, xo, Donielle
Our hearts and prayers go out to Charlotte and Mommy, Daddy, sister and grandparents. The battle persists for her needs, as well as with you, Jacqueline and your husband. We will continue to pray for all. And, will include RJ’s battle, as well.
Sincerely,
The Catania family
Beautiful little sweet Charlotte. So precious.❤️ Praying and praying she will be cured. Thanks for sharing with all the sweet pictures, and the update. Enjoy your time at home with those two precious girls.
Standing with you in prayer, expecting a miracle.
My soul is at peace but my heart is in the fight. YOU and I will NEVER GIVE UP !!! My LORD has a PLAN
I continue to pray, I’m standing for the miracle that God has planned !
Continued prayers. Keep the faith! You all are amazing. So thankful brave Charlotte is having good days! I’m believing with you that there will be many more.
Breaks my heart that your sweet girl and you guys are having to endure this. I will be whispering prayers.
I continue to pray for Charlotte and her family each and every day and hope that our loving God will allow her to experience a normal childhood.
Dear York family, we pray for you all regularly and will continue to do so. At the top of our list is Charlotte’s Miracle and we will add RJ’s Miracle as well. May God Bless you in mighty ways. Hugs!
Sending love and prayers your way in abundance!!
Enjoy your time at home as a family. Continued positive vibes from all of us at Make-A-Wish!