Charlotte has gotten through the first three vaccine shots. She has had to be in NYC each Friday since March 31st. Although she is used to shots from receiving 10+ monthly, this shot is a thicker and larger amount. It has been described by older children as being similar to the way hot bacon grease […]

Charlotte finished her 10th round of hu3f8 antibody/immunotherapy on Friday. Our sweet girl always amazes me with her pain tolerance. Monday and Wednesday, she received one pain rescue. Even though she was still hurting she didn’t want anymore pain meds. Because of this she rebounded much quicker and was back to herself much earlier than […]

As many of you wonderful followers know, Charlotte recently completed 9 rounds of immunotherapy or hu3f8 antibody. After that she had a complete workup of scans. For the first time EVER, Charlotte’s MIBG scan (nuclear scan that shows Neuroblastoma) was not as bright and she actually has some “resolved” or cleared areas! This was huge […]