Our time home went way too fast!!
But I am so grateful for something.
My list of things to do was hardly touched. There never seems to be enough time in the days. But then as I watch the girls play in the sand box or laugh as they ride their car down the driveway, that list doesn’t matter.
In our short time home, we managed to celebrate multiple birthdays including Charlotte’s (who proudly tells you she is 4 now), visit friends, see lots of family, play, eat home cooked meals, at our table, as a family. We were able to lounge and do nothing. No worries of rushing to the hospital in the cold, wind, or rain. Not trying to figure out where to order food from or what to do to kill time.
It’s been beautiful since we have been home.
Charlotte has LOVED being home.
We headed to NYC in the wee hours of the morning Sunday. First a 2 hr and 30 min flight, then a 3 hr and 50 min one. Just me, Charlotte, and Eleanor, oh what a journey it was!! It’s pretty impossible to keep a 21 monther to sit still, but mine, I was sure would be IMPOSSIBLE. She’s such a busy bundle of joy to say the least!
The first flight she fell asleep for the last hour, while Charlotte was furious that she couldn’t get comfortable!! Before the second flight, we had some time to grab food. So as we got off the plane and loaded the 3 backpacks, purse, medicine bag, and 2 kids onto the double stroller, we were quite the scene!! We rushed through the Denver airport and Charlotte decided to walk. It’s so great because she ALWAYS wants to ride but we were crunched for time and her turtle steps weren’t cutting it. She decided she was tired of walking and Eleanor felt it was her turn. Well, this child is definitely the hare of the two, but her dance moves, twists, squats, and her vision of solely herself caused her to trip a few people and a crash. Ultimately, we made it, with a little bit of sanity left.
This week Charlotte will have scans and I will have blood work to prep for the next step in treatment. Oh how I wish and hope and pray that her miracle could be in these scans. That out of nowhere she could be clear and some normalcy would return to our life.
Charlotte knew we were headed back to New York. She didn’t want to go, she wanted to stay home. We have talked and she understands why we must go back. We try to look at the positive and in my head I repeat over and over, “end result.” THIS is why we are here. For the end result. No more cancer!
I’m hoping to find some fun things to do before treatment starts. We have been to the zoo quite a bit. American girl is checked off of our list as well as the Disney store.
Wednesday morning she will have a brain and spinal MRI bright and early at 7 am. At noon she has an EKG, and then at 2 she will have her MIBG injection for scans on Thursday. Pray for peace. Scanxiety has officially hit me and I’m really struggling. Charlotte has begun throwing up again (one of her first symptoms at diagnosis and after learning of slight growth in a lower tumor) I am very afraid that there could be growth which is causing her to vomit. I can not let my fear show through, I never want her to be scared.
Please Pray for:
- Charlotte’s protection of germs and viruses
- an easy adjustment back in NYC
- clear scans or a decrease
- no disruption in treatment
- my headache to subside so I can be a better mama
- all of our friends who are also dealing with this beast
- peace for our family
- strength as we are apart
- Charlotte’s miracle
Praising God for:
- our unexpected time at home
- keeping Charlotte healthy
- the wisdom of doctors working to find something to help her and other kids
- beautiful weather
- a happy little girl
- our support
“Blessed is the one who perseveres under trial because, having stood the test, that person will receive the crown of life that the Lord has promised to those who love him.”
James 1:12 NIV
“So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.”
Isaiah 41:10 NIV
(This was done from my cell phone so please excuse the layout haha)
Sending Love and lifting prayers up your way! You are such an incredible Momma to two incredible girls!!
Molly Milby says
It was SOOO GOOD to see u the Tuesday u were at bible study. I’m SOOO glad that u had a NO agenda time here. Must of been nice!
Jill Hoffman says
stay strong sweet Charlotte, praying for all those things your strong mama is asking for….
Kelly Bechtell says
Jacqueline, I’ve been reading all your posts when they show up in my inbox. I feel inclined to finally comment and just try my best to encourage you by letting you know what an amazing woman I think you are. Your faith is an inspiration. The fact that you continually give praise to God in the face of such hardship is an amazing testament to His goodness. I think about and pray for Charlotte regularly with my family, including my own little 3 year old. I just know that one day I will open up my Graced by Charlotte email to find that the miracle has happened and she is cancer-free! Thank you for the way you worship our God and give him praise continually. You have had a profound effect on my life that I won’t soon forget.
Debbie Agnew says
Sending love, strength and hugs your way to your beautiful family and that super special angel!
praying for you guys.
Kathlyne Stokes says
Praying and sending lots of positive vibes . Xo
Debbie Agnew says
Sending prayers and strength to your beautiful family.
Rick Hale says
I will continue to keep you and your family in prayer.
Elizabeth Valdez says
Praying for healing. Stay Strong.
Sarah Phipps says
Praying for a miracle and no fear and peace and happiness for you all.
Lynne Gonsoulin says
Praise God that all goes well. I have a good feeling. Keeping all of you in our thoughts & prayers. You, Jacqueline, my dear sweet lady, are MY HERO!!! Wish I could be there to give you a hug. 😘
Your pictures were so awesome, so glad you got to be home for awhile. I sent Charlotte’s birthday gift to NY and it came back to me. 🙁 Do you have a different address I could send it to? Prayers for all of you from your Make-A-Wish family.
Veronica Russell says
Lots of prayers being lifted up for your sweet Charlotte Grace, for the Drs and the rest of your family. Hugs my friend <3
Kirby Vanderyt says
I hold you all in my heart and send loving strength to you and yours.
Natasha Flora says
Prayers as always for all that is asked and especially for the strongest mother I am honored to have met. Stay strong xoxo