Time at home has been very nice. We were still struggling to control the vomiting but she did start to eat a little more. Tyler and I were able to go out to dinner a couple of times and meet up with some great friends. It’s always great to be able to spend some time together.
Surgery has been postponed multiple times due to low blood counts. The 5th round of chemo really did a number on Charlottes poor body. After considering all of the time that had passed and would pass after recovery, the oncologist was worried about the large gap between treatment.
Therefore, surgery has been scheduled for October 22. I really struggled with this at first. I had my mind set that we were going to get this monster out of her body. And although I experienced a lot of anxiety leading up to the multiple surgery dates, I knew it was necessary. I had accepted that, only to learn it would be a MONTH later! It took some crying, praying, and words of wisdom to get me through but as we all know, God’s plan is BIGGER. Bigger than all of this!
Originally scans and another bone marrow biopsy was planned for after surgery before round 6 of chemo. They have decided to do scans the week before surgery, and Charlotte has just finished round 6 of chemo!! She is exceptionally well, with the occasional angry moments. We have stayed on top of the nausea meds (she is only on 2 though!) and she hasn’t thrown up yet!! She is laughing and playing, she is eating a little more but not enough to be considered a meal.
We are all so excited to get to spend some time at home before surgery. We are praying that she remains fever free so that we can avoid a trip to the hospital at home. The more time in our own beds, the better!!
I feel so blessed and am in tears to see all the the pictures of people wearing the shirts for Charlotte! It is such a wonderful feeling to know so many people are hopeful, that stand with us and are praying. THANK YOU SO MUCH!
Specific prayers we are asking for:
-Fever free time at home
-An appetite, a BIG appetite
-Strength for the upcoming events, physically, spiritually, and mentally
-Ultimately, Charlotte’s miracle!
My personal prayer is that surgery was postponed for so long, that chemo alone could knock it out. So that when they look at the scans, their jaws drop in amazement that she is clear and her little body never has to be cut open. That we can move on to preventative steps for the future. I know that this is a HUGE request but I also know NOTHING is too big for our God!
“Then they cried to the Lord in their trouble, and he saved them from their distress.He sent out his word and healed them; he rescued them from the grave. Let them give thanks to the Lord for his unfailing love and his wonderful deeds for mankind.”
Psalm 107:19-21
Praying for sweet Charlotte–asking big things for her–knowing HE IS A BIG GOD AND NOTHING IS TOO DIFFICULT FOR HIM.
I will most definitely be praying for her miracle from our Amazing God and for you and your husband for the physical, spiritual, and mental strength in which you all need. God Bless You and God Bless sweet Charlotte!!!!!!!!!!!!!
As u know I’m praying daily. I ALWSYST praying after u send an update LOVE the pics. u posted with this. Glad to hear she is eating a little bit more.
Thank you Jacqueline for patiently taking the time to share this journey with all of us. Each message we receive is so very precious! Your tears and prayers are shared by so many. Charlotte has made us all aware not to take things for granted and to be thankful every day for what God has given us. Your family is a blessing and an answer to prayer. Be strong darling child; God will use all this for His glory. (A gift will be coming by mail to help with hospital costs, along with continued prayers.) Thank you for the many lessons and for your beautifully tender and faithful heart. To God be the glory!
Jerry and I have kept you in our hearts and thoughts everyday, as I read and wept over your last post, my heart is broken for what you all are going through, not only should a parent not have to see their little precious baby girl endure such pain and misery, but all that charlotte has alrady gone through and to see her smile and laugh with her daddy, mommy, and little sister is amazing! Our God will carry you all through this storm you’re facing, He will not let you stand alone, your faith and labor of love, and patience of hope in our Lord Jesus Christ is a witness for us all. Love you, The Newmans
We pray that the delay in surgery provides the time for Charlotte’s body to fight this monster and the tumor be eradicated. If not, that the time has given you a chance to gain strength and have some positive moments with each other. We will continue to pray without ceasing.
The smiles on all of your faces is witness to the mighty work God is doing to bring you through this trial! Prayers will continue and will be specific for your Angel girl and her miracle.
Are there still shirts available? Somehow I missed that.
God is giving you all His Strength to get through this even on the days it doesn’t seem like it. On those days you just lean into His arms of love. Prayers surround you daily. Hugs to you all!
Love, Patti Burgess