Tonight, January 13th, Charlotte was admitted into Memorial Sloan Kettering Cancer Center. Tomorrow morning she will go under anesthia for a bone marrow biopsy and a catheter to drain her bladder during treatment. Her injection will be around 30 minutes long and then she will be monitored closely until her radioactivity is minimal.
For those who don’t know, MIBG therapy is like liquid radiation.
MIBG therapy is a treatment for refractory or relapsed neuroblastoma using “radio-labeled” MIBG molecules. A radioactive isotope of iodine is connected to the MIBG molecule which is selectively taken up by NB cells. This therapy is very similar to the MIBG scans used to detect NB, but a much higher dose is used. The scans usually use iodine-123 (faster decay) whereas MIBG treatment uses the slower decaying iodine-131 isotope.
MIBG therapy is administered as an IV infusion. Children receiving MIBG therapy are checked into a lead-lined hospital room. Their hospital bed is surrounded by two or three large lead shields, which protect parents and others from exposure to the radioactivity. Because children who receive the treatment are themselves radioactive, they must remain in the hospital room from two to five days and are confined to the bed. The level of radiation being emitted from a child’s body is constantly measured, and discharge is only permitted when the amount of radiation emitted drops to a certain level. The typical length of stay is 2 to 5 days.
This treatment is something we had hoped to receive in November. Pray this works. She will have to be in bed the entire time, which as most know, is tough for a 3 year old, or ANYONE for that matter!
Before being admitted, we were able to take Charlotte to her very first Broadway show, Aladdin! She absolutely LOVED it! The light in her eyes, her smile, her laughter, were all so wonderful to see.
Please pray for:
- zero anxiety for Charlotte
- minimal side effects
- plenty of bed activities
- protection for Tyler and I
- this treatment to work
- her miracle
We are PRAISING God for:
- allowing us to give her this treatment
- The help of family.
- Charlotte’s happy times.
- A fierce and BRAVE little girl.
God Bless you and cover you Charlotte and Daddy and Mommy. May His angels surround you and give you His most amazing peace. And may the miracle of complete healing be upon you. We are praying for you sweet girl 💕
Thinking of you and yours. Viligantly praying for peace, comfort and safety for you and Charlotte during her treatment!!
I am praying today for all of your requests and especially for a miracle!
we will be praying!
You know I’m praying. It’s my privilege to pray for your beautiful family, and for Miss Charlotte.
Praying for your brave, beautiful Charlotte and your family! God Bless You!
We are praying for God’s awesome protection and
mind blowing miracles.
Romans 15:13
Now may the God of hope fill
you with all joy and peace as you believe in Him so that you may overflow with hope by the power of the Holy Spirit.
Hang in there !
Love and prayers,
Cheri and family
I’m always praying this sweet little fighter & your family. I’m SO HAPPY that she has been able to these fun things inbetween her treatnents.