We are still in the hospital. Charlotte’s little body has had many doctors stumped. They explained what was happening as a bucket with a hole in the bottom. You constantly try to fill it, but it lets out faster than you can pour in. There have been many talks of transferring her to ICU but they wouldn’t be able to do anything different for her there and the oncology floor is safest for her immune system.
The normal amount of potassium for a child to receive is 1-2 units, Charlotte has been receiving 10-11. She has been on telemetry to monitor her heart due to junctional cardiac arrhythmia. They still believe it is damage of the kidneys from the chemotherapy and with time they will heal themselves. This could take days to weeks, every child is different. Everyday we are seeing small improvements but she has to get to a stable place before we can safely go home. We are praying this is soon.
Charlotte is currently in isolation and isn’t allowed to walk around the halls, can you imagine how hard that is? The room is too small to do much walking and her little legs are shaky as she walks to the restroom. So we have been having LOTS of craft time!
With all that is going on, and all the tubes and machines, Charlotte is in great spirits. Yesterday she was all smiles! She is laughing and singing, just being our sweet girl! She constantly says “When we go home…” or “When we leave the hospital…” I think she is just as ready to get out of here as the rest of us!
She has had two blood and two platelet transfusions, her counts are down but we are anticipating their rise. Luckily no fevers.
Pray her body heals. Pray that her appetite returns, and that she is able to absorb all the nutrients needed. Continue to pray for the miracle we are all seeking. Ask for strength in her body and for us mentally as surgery comes up.
Thank you all!
“Rejoice in the Lord alway: and again I say, Rejoice. Let your moderation be known unto all men. The Lord is at hand. Be careful for nothing; but in everything by prayer and supplication with thanksgiving let your requests be made known unto God. And the peace of God, which passeth all understanding, shall keep your hearts and minds through Christ Jesus.” Philippians 4:4-7
Thanks SO much for sending the update. As u know I pray daily for her & ur family. I had NO idea that she was this bad. When is surgery? I can’t believe she has such a good spirits & attitude at her age. LOVE u guys SO MUCH!
Thank you Molly! For your continued support and prayers! Love you
We are all praying very hard for all of you. Just think of all of the prayer time that has been generated by our little Charlotte Grace.
Thank you! Yes we are so grateful for those on their knees
Hi Grace , my name is Patti and I am a friend of the Alexanders from PSJ Florida.
I am praying for you and Charotte
Thank you!
Thank you for your up date. I feel so heart broken that Little Charlotte has to go through so much. I pray that she will get better and can back to her home. Love the new photos you posted. So sweet
Thank you for your constant prayers
Prayers are certainly withy you all Jacqueline. We are certainly praying for healing and that you NEVER SGAIN have another year like this again
Thank you Jean!
Praying for healing and strength/both physically and mentally for you all.
God’s timing is perfect and exactly what is in His plan.
Rest in His arms. Let Him hold and comfort you.
Thank you! I remind myself of this everyday
“Heavenly Father, we ask you to stop the leak in this little one’s bucket and fill her with your love and a healthy body. Lord, we know you made Charlotte and you are able to heal her. We ask this in your precious Son’s name, Jesus. “
Amen!
Praying constantly for all of you! May God wrap you in his arms and continue to carry you through this. Lord, thank you in advance for protecting her heart, lifting her spirits and healing her body from the top of her head to the tips of her toes. Amen.
Thank you Beth
So glad to hear that Charlotte is in good spirits…singing, doing crafts, and smiling. Precious gifts. We are continuing in prayer, specifically for miraculous healing, appetite, and being able to go home soon. We love you!
Yes! It’s the best to see her happy… Praying we make it home soon too
The refrain of that song we learned in Sunday School keeps going through my mind … Jesus loves the little children, all the children of the world, red, brown, yellow, black and white, they are precious in his sight, Jesus loves the little children of the world. He loves His Charlotte. He created her, He knew her before she was in your womb, and He knows her days. Believing that He holds her and her potassium levels and her nueroblastoma and her sweet attitude and her childish love for all in His big, capable hands. He is able.
Agreed!!! Charlotte loves that song!
Sending prayers!! You are an amazing Mother to your precious, beautiful daughter. Sending positive thoughts and love to you and your family!!!
Thank you
We are continually praying for your family and all the specific needs you share with us. We pray the Lord continues to wrap you all in his everlasting love and that Charlotte’s body will recover as it should so you can return home.
Thank you so much Nicole
Thank you for the update and sharing Charlotte’s smiles. We pray for complete healing,for you and your family and for all the medical professionals who are involved in her treatment. Jacqueline I am in awe of your strength. God bless you
Thank you so much Laura! Her smiles are the best and rare, so I catch them as often as possible!
Little cakes , I know right now everything seems so out of place in your little world. Know it is all for you to get the best care. I pray thru all of this doctors see miricales that they meet our Jesus and see him put his hands on you and heal you from the inside out. You keep fighting little one and you keep your strength, Jesus is right by you when ever you need. Just reach up and he will hold your hand. I pray for you and pray that this will be one day your big testimony of how Jesus saved you and blessed your family . Sending hugs .
Charlotte is the strongest person I know! Praying her testimony will touch many others one day
Wow its,amazing the grace our Lord is giving you and your lovely Charlotte. We are praying, love you.
James
Thank you!
Strength and vulnerability run together so many times in this life. Praying for God to be glorified and for your family to be drawn closer through this whole thing. Hold fast and hug each other often!
Love you guys!
That is very true! He is the only way we will see this through
we continue to keep you in our thoughts and prayers, sending much love and hugs your way
I am working on spreading the word for prayer and financial help for your family
Thank you very much!
I’m praying for you all everyday.