Since we got home, the days have flown by!! Charlotte has been full of energy and our “happy” girl that she once was before cancer, came in to our lives. We were able to go to the pumpkin patch and pick out many shapes and sizes. We went on a Tuesday and had the entire patch to ourselves. It was so good to see her walking around and excited to see ALL of the pumpkins!
The following day we were FINALLY able to take a birthday present to Charlottes friend. His birthday was in August and she had been constantly asking me about it. She had sooo much fun, and at one point, she just laid in the grass and acted as if nothing else in the world mattered. It was such a touching and lovely moment.
Thursday, we received her blood counts and she had hit zero white blood count, Neutropenic. Usually when Charlotte gets here, she gets a fever. All day I took her temperature and early in the evening she hit 100.7. Anything above 100.5 requires a hospital admit. I waited a few minutes, took it again and she was at 101.3. We headed into our local hospital. I am so grateful to have a pediatrician I can text and she gets everything set up. We went right up to the Peds floor and into our room! Charlotte knows all of the nurses and is comfortable enough to carry on conversations. (This is a HUGE accomplishment!)
Our stay was 6 days long this time. Charlottes cultures came back negative for 48 hours and she was fever free as well. We had to remain in the hospital until her counts were showing traces of being on the rise. She had multiple blood transfusions and a platelet transfusion.
Once we were discharged, I had the happiest little girl attached to my hand! She tried her hardest to run down the hall saying, “I’m free!!!” It was the sweetest sight and sound 🙂
Home has been good. God is good! He is answering prayers daily! Charlotte has not been like this since before she was diagnosed. Some days I wonder if she still has cancer.
Wednesday and Thursday, the 14th and 15th, we have the whole caboodle of scans and tests!
Wednesday: Echocardiogram, MIBG injection, MRI, and CT scans (she will be under sedation)
Thursday: Hearing test, MIBG scan, and a bone marrow biopsy (also sedated)
We have already started premedicating Charlotte for one of these scans to protect her thyroid.
PLEASE PRAY
My prayer is still that her miracle will be a tumor free, cancer free, side effect free little healthy body! I know God has her!
- For comfort as she has two FULL days, she is very irritable when waking from sedation.
- For few side effects
- For perfect views of scans and tests
- For a strong heart
- For perfect hearing
- For her sweet spirit
- For mom and dad, as we await results
- And most of all, FOR CLEAR SCANS!!
I know my list is long, I could go on and on. I thank each and every one of you . We appreciate all, that go above and beyond, we couldn’t do this without you! You truly are our blessing and we will never be able to thank you enough!
We are not sure when results of the scans will get in. Our Oncologist will go over this on the phone and because they are being done at the end of this week, we may not hear until next week. Please be sensitive to this as all of the calls, texts, and messages can be overwhelming. As soon as the time is right, I will share the results. We too are anxious!
Again, thank you for taking the time to keep up with our sweet girl! Thank you for the support and all of the pictures in your shirts!! Every time I show Charlotte she says, “They wear gold for Charlotte!” It’s the sweetest!
“Be joyful in hope, patient in affliction, faithful in prayer.” Romans 12:12
Nicole says
Thank you for the detailed prayer requests. Also, for sharing all the wonderful days you’ve all shared having Charlotte back to what your remember. Her smiles are so wonderful and she looks so happy. We know you’ve got a lot going on in the next couple of weeks and I do pray you will continue to see those gorgeous smiles.
Laura says
Such good news that she is smiling and doing better. Sending prayers and hugs to you all for the weeks ahead.
Molly Milby says
Thanks SO MUCH for sharing this AWESOME update. I’m SO Glad the she has her energy back & out seeing & doing things again. I will be praying for all ur requests
Priscilla V. says
God bless you Charlotte, I love your smile. I am also battling cancer and just wanted to tell you that you look like you have a great spirit and heart. Do you like Hello Kitty, I love her and when I go to Chemo I take her with me. She is on my blankets, and bags. Always have something you love from home so that it comforts you. To Charlottes parents: strength, hope, and presence is all she needs. God bless you all.
Brandee Kliewer says
Sweet Charlotte! Her sweet spirit shines through the pictures! We’re praying for all the details you listed & believing for miracles for your baby.
Katalina Russell says
You are an amazing mommy! She is in the best of hands and God made sure of that:-).
God bless you and be with you all on this journey. Thank God for the nurses Charlotte knows and that they take good care of her. Thank God for all the treatments that help keep her safe. And most of all thank God for her smiles♡!
Thank you so much for sharing with us your hardship and the process so we can all be humbled and lifted up with HOPE LOVE FAITH and PRAYER for your family.
We love your precious gorgeous little Charlotte!
Shari Burkhart-Buening says
My heart aches for you all, and yet I have joy in knowing that our God is able and loves deeply. Thank you for sharing your heart with all of us. We will continue to pray. In God’s amazing Love!
mona dailey says
So thankful to our Heavenly Father for the blessings of joy, smiles, and good times together. May His tender love continue to inspire, strengthen and encourage all of you as you continue this journey. We are along side of you, lifting you up and feeling your heart filled joys and trials. Many thanks to our Great and loving God!