Charlotte finished her 4th round of antibody of Friday. As well as 24 radiation treatments to the problem areas in her last CT scan. She struggled with a lot of pain Friday and slept until midnight. When she woke, she wanted a pepperoni pizza so we walked down the street for a slice.
Today is the day we have been waiting for, the day we learn if this painful treatment is doing its job and ridding our sweet girl of cancer. We are currently at the hospital waiting for the first of 3 scans. This morning, Charlotte will be getting a brain and orbital MRI. As you know, she has 3 tumors in her head, not the brain but they routinely do this scan to make sure it isn’t breaking the brain barrier or spreading. This scan is about an hour and a half.
Then at noon they will do a CT of the chest, abdomen, and pelvis. The CT is only 15 mins and then two hours later she will receive an MIBG injection to get her ready for the MIBG scan tomorrow.
Charlottes MIBG scan will be done at 8 am. She will be doing all of her scans without sedation and this is the only one she hasn’t done. We are told its much easier than the MRI because it’s not as loud. It is also around an hour and a half.
At some point tomorrow, she will have another bone marrow biopsy, we will get the call today for the time.
A lot of anxiety leads up to scans, in the cancer world, we call it “scanxiety.” It’s tough. It’s ideal to think positively and for the best results. It’s what comes natural. But then as you wait and you start thinking, anything could happen. The simplest, smallest growth can crush you. It can turn your world upside down.
We have had a lot of bad news around us lately, it’s heartbreaking. It’s something no parent should EVER have to experience.
Our sweet friend Emily has gone home to Jesus. She was able to enjoy her 3rd birthday not long ago. Please pray for her family
Please pray for:
- Good scan results, even stable are considered “good”
- Calm nerves during scans
- Minimal pain with the biopsy
- Little anxiety when she goes under for the biopsy (she does NOT like to be put to sleep)
- Peace for Emily’s family as they mourn their baby
- Pray for RJ, he was sent home to be comfortable with his family
- Charlotte’s miracle
Thanking God for:
- Charlotte’s smiles and laughs
- Getting us this far, as I know tomorrow isn’t promised
- our amazing support system
- answered prayers
- a break to head home!!
“And the God of all grace, who called you to his eternal glory in Christ, after you have suffered a little while, will himself restore you and make you strong, firm and steadfast.”
1 Peter 5:10 NIV
“Ah Lord God! behold, thou hast made the heaven and the earth by thy great power and stretched out arm, and there is nothing too hard for thee:”
Jeremiah 32:17 KJV
Rick Hale says
We will continue to lift you up in prayer from Roswell.
Renee says
My heart feels sad for those two families. It just doesn’t seem right.
As always we keep your sweet little girl in our prayers for good scan results and lots of sprinkles of joy, even if it is a slice of pizza.
🙏🏻🙏🏻🙏🏻🙏🏻
Sue Amundson says
You are all in my prayers.
Susie says
Lord, You are able to do all things exceedingly and abundantly-please do!
Brenda Johnson says
Tears streaming with heartbreak for the families who are suffering such agonizing loss. I pray God’s gracious supernatural peace and comfort over each grieving soul. And for our Little Angel RJ…as he rests now in God’s arms at home, surrounded by love, entrusted with great faith to his Creator.
Even as we faithfully rejoice with your family for the many answered prayers for our incredibly courageous and brave….Sweet Charlotte Grace💗
And offer continued prayers as we hope for good scans with minimal pain or anxiety…and BELIEVE will soon bring Charlotte her MIRACLE.
May You, Charlotte and All your Family…be encouraged with renewed strength, stamina and perseverance with each new beak of day.
“Let the morning bring me word of Your unfailing love, for I have put my trust in You.” Psalm 143:8
Andrea Isaacson says
praying for you all. Our Bible study has been lifting you up in prayer….believing for a miracle. Grace and peace be multiplied to you all. Andrea
Teri Stamos (The Bend Trolley) says
Wishing for the best news for Charlotte and all of you. HUGS………
Robyn Brown says
The Lord is faithful in all things. There is not a day that goes by that I don’t place her before the Lord in prayer. Praying those scans have excellent news and Praying Charolette recovers beautifully. I’m thankful for her beautiful smile. Hugs from Spring, Texas
Helen Brisson, Bend says
Prayers and Thanksgivings continue to come your way.
Gods love and peace be with your entire family.
Veronica says
Prayers for Charlotte, that all comes out well!🙏💕