Tuesday we headed to Portland in hopes to get another stem cell harvest. After Charlottes second round of chemo they did one. They pulled enough stem cells for 2.5 stem cell rescues. With how advanced Charlottes cancer is and the treatment ahead, Sloan believes we need enough stem cells for 4-5 rescues.
We arrived first thing Tuesday morning for a blood draw. It takes about two hours to get the stem cell count. We got the call that she was at .002, too low to start the harvest and to start the triple dose of her GCSF (blood count booster). My grandparents arrived from Texas around noon and Charlotte couldn’t contain her excitement!!
Wednesday morning we went in again, with the hopes of higher counts so that she could receive some medicine that would make her body purge more stem cells. Right after her blood draw she had a brain MRI. We rode the tram to the bottom of the hill. It was Charlottes first time! She said she felt like she was flying!
Charlotte has had many scans, but almost all of them have been under sedation, this one, was not. I was very worried about her being awake. Luckily I was able to join her. They gave us both ear plugs and I explained to her how important it was to be very still. She did AMAZING! She wasn’t scared and she didn’t move. She told me she was acting like a “statue” sweet girl definitely was!!
Right after the scan we had an appointment with the neurosurgeon. They were concerned about extra fluid and this was a routine scan to check on it. Good news!! The fluid was in a normal range! They believe the chemo caused atrophy to her brain which made it look like there was more fluid. All is well now!
Shortly after the MRI we got the results of her stem cell count. It was less than .001! She was going lower! So many thoughts ran through my head, what in the world is going on? How could they possibly be lower?!! We were giving her triple doses of her meds, all of her counts were up, what is going on??
After realizing I had no control, we headed to the hotel. Once the girls napped, we took them to Build-a-Bear. It was a little treat for Charlotte for doing so well in her MRI. She picked out Bob from the Minions, and Eleanor chose a bunny. They both had so much fun together, it was great to see their joy.
Today, I asked for prayers and prayed hard myself with the hopes of being able to start this harvest that she needs. First thing, we had another blood draw. Charlotte wanted to play at the hospital for a little bit, so she did. I was able to talk with the stem cell Doctor and pick her brain a little bit. I got the call later that her counts were the same as yesterday. At first I was upset and frustrated. After regrouping, I made some calls and got some answers. After lots of back and forth, a new plan was made.
We are now home. We will start the triple dose of GCSF the day after Thanksgiving through the weekend and head to Portland on the 30th. They will give her the meds to hook her up to the stem cell machine. PRAY they get more than they need!!
My heart has been overwhelmed with thanks and joy. The feeling of support is one that I never knew was possible!
Continue praying for our sweet girls miracle
For no nausea
For a HUGE appetite
For good memories made
For answers from insurance
For treatment in New York to begin as soon as possible!
For her stem cells to shoot out of the roof this next time around.
Thank you so much for your faithfulness!
“I will praise thee, O Lord, with my whole heart; I will shew forth all thy marvellous works.”
Psalms 9:1 KJV
“Though you have not seen him, you love him; and even though you do not see him now, you believe in him and are filled with an inexpressible and glorious joy, for you are receiving the end result of your faith, the salvation of your souls.”
1 Peter 1:8-9 NIV
Sandra Shepherd says
Prayers for your sweet angel.
Julie Hodges says
Many Prayers continue Daily for Sweet Charlotte! God is Good and He’s GOT This! In the Lord’s hands we all sit but Little Charlotte has a very Special place with him! She will be Healed!!! Love and Hugs to ALL….Hang On there Jacqueline you are an AMAZING Momma!
Joseph peake says
1 Thessalonians 5:16-18English Standard Version (ESV)
16 Rejoice always, 17 pray without ceasing, 18 give thanks in all circumstances; for this is the will of God in Christ Jesus for you.
Praying for your family and know that he hears our prayers and one day we all will be cured .
Savet Doherty says
I will pray for your little girl
My friend Christine shares your updates on Facebook, and your story hits very close to home for me. My brother was diagnosed with leukemia at age 17 and immediately relapsed after treatment, facing another battle at 18. He is now 21 and a true modern day miracle. After a prognosis of less that 50% chance to live, and a failed stem cell transplant in one of the greatest cancer hospitals in the world, MD Anderson, he has been cancer and chemo free for over 2 years. His own bone marrow grew back from nothing…and it grew back healthy. The ONLY explanation for his healing is God. He had medical experts at a loss for words, who described his remission as “spontaneous remission due to random events.” We know who it was. Keep your faith, with God all things are possible, and miracles truly happen everyday! I will be in prayer over your daughter!
Joy bachman says
Praying everyday! Would you be comfortable with me coming and praying over her?
Jody Alpers says
You are doing exactly what the Lord asks of us…. Trusting with all your heart and not leaning on your own understanding. You are acknowledging Him in all your ways, so He will make your paths straight. Such an incredible privilege to pray for all of you.
Esther Valdez says
We continue to pray for a miracle. God bless little Charlotte.
Dee Mason says
Prayers continue for your sweet girl and all of you as you see her through this journey.
Melissa farmer says
I pray daily for Charlotte…her sweet spirit shines through the pictures you post! May God be with you and your family…
Pj swan says
Prayers, blessings, light and sparkles to all of you. Keep believing and celebrating the strength of this sweet little gem and all of you who surround her.
Brandee Kliewer says
We’re praying for little Charlotte & you too Momma
Lily Rico says
Praying for your sweet girl and all of you. Keep the faith! God bless you all.