I know many of you are patiently waiting for results of Charlottes recent scans. I thank you for that. We had two full days of running all over OHSU getting tests, scans, injections, blood draws, multiple sedations, etc. it was exhausting but we got it done!!
Our oncologist informed us he would be off on Friday so we wouldn’t hear the results until Monday. It was stressful but I was prepared! We got home Thursday, early evening and settled in to our comfort zone 🙂
Friday morning I received a phone call from the hospital, it was Charlotte’s doctor. He said he didn’t want to make me wait until Monday to hear the results. I could tell in his voice it wasn’t good. We learned that the tumor sizes were still the same as the previous scans. But with the MIBG scan, the one that shows the cancers activity throughout the body, it was still lighting up all over. There was no change. The doctor said she didn’t respond to chemo and we would have to come up with a new plan. He told me I needed to call Memorial Sloan Kettering in New York as soon as we hung up, as they could offer us more advanced options.
Surgery is postponed again! Right now we are at a stand still, I NEVER EVER expected this! Mostly because Charlotte has been doing SO good!
So many emotions have raced through me; anger, sadness, helplessness, confusion, hate and brokenness. I have cried, over and over. I cry now as I share with you this news. Daily, it seems so unreal that my baby girl is going through this. That she has to endure such an awful situation. More and more she is being robbed of her childhood.
I KNOW God’s plan is better than I can imagine, but right now, I don’t see how it could be.
I continue to pray, to hope, to cry out and plead for my daughter’s life! We have spoken with the team of doctors in New York and they are currently reviewing Charlotte’s case. They will come up with a treatment plan and we will continue to pray for her miracle.
We are enjoying our happy girl as much as possible right now. I dread what’s ahead, with more poison in her body, more painful treatments, and who knows what else. It’s not fair! She is so strong and so brave, I can’t imagine enduring the things she does.
I know that God is our ROCK. That He doesn’t fail us, He is here, and will see us through this. Some days are just hard to accept it.
Please continue to pray!
Pray for:
- her miracle
- moments of joy and happiness, for Charlotte and our family
- that we don’t take our time with her for granted
- knowledge for the team going over her case
- that her new plan of treatment will work
- for peace
Thank you all for your prayers and thoughts! Please don’t stop! I know many are disappointed, but don’t give up hope, for He is faithful!
Psalm 40
“I waited patiently for the Lord; and he inclined unto me, and heard my cry.2 He brought me up also out of an horrible pit, out of the miry clay, and set my feet upon a rock, and established my goings.3 And he hath put a new song in my mouth, even praise unto our God: many shall see it, and fear, and shall trust in the Lord.4 Blessed is that man that maketh the Lord his trust, and respecteth not the proud, nor such as turn aside to lies.5 Many, O Lord my God, are thy wonderful works which thou hast done, and thy thoughts which are to us-ward: they cannot be reckoned up in order unto thee: if I would declare and speak of them, they are more than can be numbered.6 Sacrifice and offering thou didst not desire; mine ears hast thou opened: burnt offering and sin offering hast thou not required.7 Then said I, Lo, I come: in the volume of the book it is written of me,8 I delight to do thy will, O my God: yea, thy law is within my heart.9 I have preached righteousness in the great congregation: lo, I have not refrained my lips, O Lord, thou knowest.10 I have not hid thy righteousness within my heart; I have declared thy faithfulness and thy salvation: I have not concealed thy lovingkindness and thy truth from the great congregation.11 Withhold not thou thy tender mercies from me, O Lord: let thy lovingkindness and thy truth continually preserve me.12 For innumerable evils have compassed me about: mine iniquities have taken hold upon me, so that I am not able to look up; they are more than the hairs of mine head: therefore my heart faileth me.13 Be pleased, O Lord, to deliver me: O Lord, make haste to help me.14 Let them be ashamed and confounded together that seek after my soul to destroy it; let them be driven backward and put to shame that wish me evil.15 Let them be desolate for a reward of their shame that say unto me, Aha, aha.16 Let all those that seek thee rejoice and be glad in thee: let such as love thy salvation say continually, The Lord be magnified. 17 But I am poor and needy; yet the Lord thinketh upon me: thou art my help and my deliverer; make no tarrying, O my God.”
Tyler and Jacqueline, I am so sorry to hear the results of the scans. I was so sure they would show a miracle. Charlotte is so brave. I know that God is with you and Charlotte and will walk with you each step. Continuing to pray for miraculous healing, wisdom, and strength. Love and hugs to each if you.
I’m so sorry to hear of this news but am constantly lifting you all and sweet Charlotte up in prayer. Praying for peace, wisdom for her doctors, and for the miracle through the healing hands of the good Lord. She is so beautiful and brave. Love to you all.
BIG SIGH! I’m lost for words. What a sad report about her scans & having to postpone again. I was SO sure from ALL of your pictures that she was basically done except for the surgery. SOOOOOO sorry that u guys r having to go through this. U r SOOOO STRONG! Definatelty still prayng!
I am so sorry and deeply sad. Our family will continue to pray for healing for Charlotte, peace and encouragement for you and your sweet family & wisdom for the doctors. I pray God will give you some special family time together.
Dear sweet ones,
I had so hoped to hear good news. My heart aches for you all. I am praying for God’s peace and comfort to surround you and carry you through this. I pray for His hand to touch and heal little Charlotte. I will not stop praying this!!!!
Pray without ceasing!!
You are all on my mind and in my heart all the time and I will continue to pray!!! I hope you can feel all the love and prayers coming your way.
Pray without ceasing
Oh York Family, I am sorry about the news. We will continue to pray and are grateful that Charlotte will be in the hands of experts. May God be their master. I love your family and think about you throughout my day. Please please let me know if you need anything.
our prayers will continue to cover little Charlotte as well as your family. I cannot begin to understand your pain. Our love and prayers . Dirk and Denise Graves
The Crofut family will pray earnestly that God gives this sweet little fighter good health and all that you’ve asked. Tashi & Orion (our boys) will be dedicating their games this weekend to her as well. Blessings and good health to her please God.
I dont know you (a friend of a friends friend!) However I know Our God. I KNOW His love for His Children. I know He is Good. Now I know your family and Charlotte and I commit to pray for you all daily.
I am so sorry for this sad news for you all..I know how hard this is the ups and downs. My son (not as young as your daughter) went through 18 months of treatments, surgeries and tests.. As a mother you feel so helpless but you keep going for a chance at a miracle. Prayers and hugs to you all
Humbly Lord God Almighty I bow before you and ask for complete total healing of your precious child Charlotte.
Praying that there can be peace and joy in the midst of your storm, that all of you can feel God’s presence daily and to know how much He loves all of you. Hugs and prayers.
York Family, we will continue to pray and ask God to intervene in a mighty way. I can’t understand the depth of your despair and pray that God will cover you and that you’ll find peace, one that only He can provide. Charlotte is so brave, amazing, and loved.
I don’t know you but I’m praying for you and your baby girl!!! Healing come in the name of Jesus! Perfect comfort come in the presence of the Holy Spirit!
So so sad Jacqueline. Will continue praying for your little angel. No child should have to go through this. Wish we knew gods plan
I cried with you when I heard the report. Will continue in prayet for all of you.
My heart breaks for you and your family and the anguish and helplessness hearing the results must have caused. Praying incessantly for sweet Charlotte and your family. God will see ALL of you through this!!! Sending long, bear hugs your way…
Please Lord hear our Prayers for this Precious Child! Let her Body be healed from all disease. Lift up her Family give them Strength and Peace as they continue to find all that is Best for Charlotte. May the days ahead bring lots of Fun and Laughter for Little Miss Charlotte! Thank You Lord for being Gracious Always!
We will continue to pray for a miracle for Charlotte that she’s rid of this aweful disease. That she continues to have strength and is your happy self and you and Tyler continue to have strength for what lies ahead. We hope the New York team will do amazing things. Love you guys!!
May the love of our Heavenly Father embrace you and give you peace , strength, direction and hope. Continuing to lift all of you up before His throne.
I am so so sorry for your daughter that she has to go through this – and for you. My prayers are with you.
I am so happy there is a comment button – maybe SOMEONE will have an idea for something that will help. I don’t know enough to be able to help, but I BELIEVE there is a lot of help through nutrition. I pray the right person with the right knowledge will see this and be able to help you find the help you need.
God is amazing – I pray He BRING the answer to you – the solution.
Love to all! Continuing to pray for Charlotte and the miracle that awaits her! Praying for strength for you all! Love you!
I am feeling so sad today. I was so hoping Charlotte’s test scans would come back good. Praying for God to give you the strength you need to go on and be brave. I admire your steady faith in God, and I know he will pull you and your family through all this and Charlotte will be fully healed.
Hi Jacqueline, you don’t know me but my husband Jakeb went to school with your husband and I guess they ran into each other while we were also in Doernbecher with our son Abel. I truly truly believe in miracles and in God’s will to heal and I believe it’s also no coincidence that we just happened to watch this video on YouTube the day before Jake ran into your husband and had heard the diagnosis. I hope you’ll watch it as it is an amazing story and will really hit home for you as it did for us. God bless you all! We are praying, speaking, believing and standing in faith for Charlotte’s full healing!
https://youtu.be/uc2qTVuW1V8
Proverbs 3:5
“Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge him…”
It is evident that you are doing this. I appreciate your testimony and will continue to pray for Charlotte and your family.
Jacqueline and Tyler,
My prayers go out to your family. Find comfort in each others arms, and in Charlotte’s smile.
I am so crushed to read the unfortunate news, Jac. Just the thought of what you and your family must be feeling absolutely breaks my heart. I think and pray for little Charlotte all the time & show AJ pics of Charlotte so that he knows the little girl we talk about at night. Stay strong even when the tunnel is dark! I wish I could just hug you and that sweet innocent baby!
I am heartbroken with you over this news.
Tyler and Jacqueline, our hearts just ache hearing the latest update. We know our God is sufficient in the midst of our needs but sometimes the hurt and pain seem more than we can bear. We’ll continue to pray for your miracle, peace, and that joy would outshine the darkness.
I am so sorry to read about Charlotte’s results. I am just trusting in God. I am praying for all of you. I am also praying God’s wisdom on the doctors. God’s great peace,blessings, and love to you.
You are doing the right thing in your situation. . Leaning on Jesus. We love you all♡♡♡♡♡
Prayets for this little angel. God is control even in the pain and hurt.
HEAVENLY FATHER, please engulf this family in thine arms, take away their sorrow and allow them to feel thine love, Father I can’t ask you to change the plans for this Child, but I can ask Thee, that she won’t feel pain, fear, sadness, that thine Angels will surround her and she will feel comforted. Allow this family to find peace within thine unmeasurable, unconditional love.
Father these things we pray to Thee in the name of Thine SON, redeemer and savior, even JESUS CHRIST, Amen.