Charlotte was discharged in the early evening last Friday. It was so nice to be home and sleep in our own beds. While I was so excited to be home, I was also nervous about not having the daily blood draws to know how Charlotte’s kidneys were working.
They finally came up with a TPN recipe that is keeping her electrolytes stable. That was one of the factors determining our hospital stay. I have to admit, the TPN has made a world of difference!! Even though Charlotte was eating, it was nothing substantial or nutritious and she was skin and bones. I hate that phrase because growing up, I was referred to that way often. But she LITERALLY was turning in to skin and bones. She is slowly gaining more meat and is wanting to be more active, PRAISE the Lord!!!
Upon getting home, Charlotte had BIG plans to visit friends and go places. With school starting and the colder weather coming in, so are the sicknesses. I want so bad for her to be able to play and do the things we used to, but I know right now, it isn’t possible. Tyler and I also have to be very careful with being exposed to illness. I ask each of you that may be around us, to be mindful of that. If we get sick, we will not be able to be near Charlotte. I can’t imagine how much harder this fight would be without us beside her.
Charlotte’s appetite is nonexistent. She may have a couple bites of string cheese or a berry and beet popsicle but that is it. Once a day, if that. I have begged and pleaded with her to eat and her response is “If I eat food I will throw up mom.” She is still being affected by the last chemo from over 3 weeks ago, even with all of the nausea meds.
Through the miserable nausea, Charlotte is in good spirits and constantly cracking jokes. She wants to go outside almost daily and has had some extremely precious moments with her little sister Eleanor. Every day her fighter spirit shines through and it’s so encouraging. Knowing how hard adults often handle a lesser treatment, my baby girl can still laugh and make those around her laugh. The other day I was giving her some medicine, I accidentally spilled some on her and she said, “Come on mom, get it together!” My words are already coming out of her mouth!! Lol
Surgery has been scheduled for this Monday morning. They plan on resecting the main, larger tumor, removing her left adrenal gland, where it’s located. The estimated time will be 6-8 hours. UPDATE*** Surgery has been postponed due to low blood counts
Pray for peace for me, I have a feeling this will be one of the longest days of my life!
Pray for the surgeon, doctors, nurses, anesthesiologists and anyone else involved, may God guide them
Pray for strength for Charlotte, the incision will be large and she struggles with small wounds.
Pray, pray for an appetite, for health, and weight gain.
Please pray for our family, that through this hard time, we are strengthened and are able to draw closer to each other and to God.
Ultimately, I believe this is in Gods hands. I trust that He has already healed our baby girl and has already shown us so many blessings. We are not alone, and while He is allowing this to happen, He did not “make” this happen. I remind all those reading, because it can often be forgotten. Charlotte’s experience has touched so many and so many of you have touched my whole family! Thank you from the bottom of our hearts!!
“For ye have need of patience, that, after ye have done the will of God, ye might receive the promise.”
Hebrews 10:36 KJV
Esther Valdez says
We love you Baby Charlotte. Be strong for your Mom and Dad and may God be with you.
sally green says
Jacqueline, Thank you for sharing during this most difficult of times. Charlotte, you and Tyler have been heavy on my heart all week. My prayers are and will be with you as you continue to walk this road. May God strengthen your spirits giving you peace and rest. May His mercies be new every morning. May you all be sheltered in the Shadow of His great wings. I will be lifting Charlotte and praying for physical strength and weight gain. For her nausea to end and for Gods great comfort. I will pray for God’s hands to guide every Drs. Hand as they perform Charlotte surgery. May they all be well rested, may the surgery room be free of all germs, may all the equipment be in perfect order. May Charlotte have the perfect anesthesia for her body. May she wake up with out any nausea. May her incision be no larger than necessary and may it heal quickly with minimal pain and irrigation. May you and Tyler feel God holding you as you wait for your precious baby girl to come out of surgery and into your arms. May God’s glory shine through Charlotte and may complete healing be hers.
norma atnip says
Thank you for your update on Charlotte. I will be thinking about her and praying for her surgery this week that it will be successful.
Amber Johnstone says
Saying prayers for Monday and for her to gain strength in these days leading up to it! Also for you all and the fam! Love you all!!
Erika Withers says
So very many prayers for your precious girl and for your family!
Mag & Viola Martinez says
Today we will lift your baby in prayer, by name, all 150 of us. I cannot imagine your life right now, but as a care giver and cancer specialist, please know we never look at all cases the same. Charlotte will get the special attention she needs every time. Every child patient touches us too. God’s Blessings on your family.
Andrea Palladino says
Praying vigilantly for lovely Charlotte, you, Tyler and your entire family. May strength and healing be with your family throughout their coming days, more than ever!!
Tony, Perri and family says
Praying for Charlotte, you and your family, and for the doctors and nurses. We pray for strength and peace for you all and for healing for sweet Charlotte.
Michelle Bailey says
You and Tyler are amazing parents and a perfect example of God’s love, strength, compassion and encouragement. I stand in faith with you that God is healing precious Charlotte and she will grow up with an incredible testimony. We are consistently praying for all of you. I love ya’ll very much! #gracedbycharlotte
Praying for and with you!
It’s so good to hear that she is well enought for surgery, albeit a HUGE one! Praying for you all! Love, Jill
Bronda Hayes says
I am praying for a successful surgery and recovery for Charlotte. I will lift Charlotte and the rest of your family up in prayer throughout the day tomorrow. Just know that her healing is already done. I believe that in my heart and I have total faith in our God that he has already healed your baby girl. Love you.
Praying for little Charlotte!
” and the enemy was overcome by the blood of the Lamb and the word of our testimony ” Praying the blood of Jesus and that the words of my mouth of healing, courage and comfort go forth. Amen
Kirby Vanderyt says
You will all be in my heart tomorrow, may the strength in love surround and support you all!
Jean whittaker says
Prayers, prayers and more prayers. I’m. Having good feelings about the surgery. Hope I’m right
Denise graves says
We will continue to pray for little Charlotte and you all. Thank you for the updates. Deep prayer tomorrow morning.
Brenda Johnson says
Joining hundreds others with prayers for your dear Charlotte who has truly graced us all with her beauty, charm and joy in spite of such suffering. And prayers as well for you and Tyler and All your family for peace and perseverance as you wait on with hope in the One and Only. Jacqueline your faith is your strength and a strong, inspiring testimony to all. Thanking God that He is with you and praying His blessings and healing touch on your precious child.
Molly Milby says
This is an encouraging e-mail. I LOVE that this little fighter is cracking jokes. I will pray tonight for ALL the requests u requested. What time is the surgery tomorrow? I send my 💗💖💕💟❤💓💝 to ALL of u! God is with u in this battle!
Jacqueline York says
SURGERY HAS BEEN POSTPONED DUE TO LOW BLOOD COUNTS
I have been praying for that sweet girl every single day. My constant thoughts and prayers are with your family.