I have sat down multiple times to write this post. At first, it was not easy. Charlotte started her scans with a CT on Monday, then MIBG and bone marrow biopsy on Tuesday, followed by a flight home. Monday night Charlotte’s oncologist called me to tell me the CT showed two new spots near her spine and some change near her ribs. I was devastated, unsure of what to think, how to feel, or what to do. They wanted to add a PET scan as well as a spinal MRI. We extended our stay to make these additional scans possible, hoping to find out what was going on.
That night, after finding out, Charlotte wanted pizza. We walked to her favorite place and met with some friends. During the walk, Eleanor kept playing Hillary Scott’s “Thy Will be Done” over and over again. As I trailed behind, I sang the words crying. “I don’t want to think, I may never understand, that my broken heart is a part of your plan… Sometimes I gotta stop, remember that your God and I am not” over and over I kept saying “Thy Will be done.” Trying to brace the hurt, not to break down, just enjoy our current moments.
Charlotte has been doing so well. She has been gaining strength, she just had a port placed, her hair is growing back, she is learning, playing, just enjoying her fourth year of life. I didn’t see how a progression was even possible.
I reached out to a few prayer warriors that have been my go to’s since the beginning. I asked for prayers, that her other scans would be stable, that the MRI would show nothing, that the PET would show those spots were not active, and that her marrows would be clear. Often times in my requests, I’m not particular. I pray for stable or clear scans, this time, we needed more!
Tuesday she did her scans and biopsy, Wednesday was the PET. Our new departure date was Thursday afternoon. Anxiously awaiting the results, we didn’t hear anything. As we were going through security, I got the phone call. All of Charlotte’s scan showed stable!!! The new spots didn’t not show on the spinal MRI! How was this possible? The PET showed the spots were not active! PRAISE THE LORD!! Again I broke down in tears! Only God could have done this, only He could have answered these specific prayers! AMAZING!! Bone marrow results weren’t in yet but I was happy regardless.
We landed at our layover 4.5 hours later and I received an email from the oncologist. Charlotte’s bone marrow was CLEAR!!! Never has it been clear! I cried AGAIN!! Tears of joy, of disbelief. A couple of days ago, I had cried over and over feeling broken and now to hear this amazing news, tears of happiness.
He truly is working in our lives, everyday. Every opportunity we allow, He is there. I truly believe He hears me, sees me, loves me, and will NEVER leave me. As many of you know, He has been our Rock through this entire battle.
PRAISING God for
Good news!!
Being so so good to us
Answered prayers
Safe travel home
Praying for
Our friends that have scans coming up
Those who have lost sight of your goodness
Charlotte’s miracle
“As for God, his way is perfect: The Lord ʼs word is flawless; he shields all who take refuge in him.”
Psalm 18:30 NIV
“Hear me, Lord, my plea is just; listen to my cry. Hear my prayer— it does not rise from deceitful lips. Let my vindication come from you; may your eyes see what is right.”
Psalm 17:1-2 NIV
“I have set the Lord always before me: because he is at my right hand, I shall not be moved.”
Psalms 16:8 KJV
I wanted to share the lyrics to this song, for me, it is a powerful one.
Thy Will- Hillary Scott
I’m so confused
I know I heard you loud and clear
So, I followed through
Somehow I ended up here
I don’t wanna think
I may never understand
That my broken heart is a part of your plan
When I try to pray
All I’ve got is hurt and these four words
Thy will be done
Thy will be done
Thy will be done
I know you’re good
But this don’t feel good right now
And I know you think
Of things I could never think about
It’s hard to count it all joy
Distracted by the noise
Just trying to make sense
Of all your promises
Sometimes I gotta stop
Remember that you’re God
And I am not
So
Thy will be done
Thy will be done
Thy will be done
Like a child on my knees all that comes to me is
Thy will be done
Thy will be done
Thy will be done
I know you see me
I know you hear me, Lord
Your plans are for me
Goodness you have in store
I know you hear me
I know you see me, Lord
Your plans are for me
Good news you have in store
So, thy will be done
Thy will be done
Thy will be done
Like a child on my knees all that comes to me is
Thy will be done
Thy will be done
Thy will be done
I know you see me
I know you hear me, Lord
Jumping for joy and praising God with you.
Praise you God
Praising God for answering prayers!
Praise the Lord! He is so good!
Oh my gosh tears of happiness here. God is good. I started reading your post with tears of sadness and ended up with tears of joy. We continue to pray daily for Charlotte and your family. ❤❤
Tears of joy and gratitude to God for this Miraculous Healing He is doing in Charlotte’s little body. May ALL who have seen and heard of His Works be profoundly in Awe of His Power and Glory. And thanking God, too, for keeping You, Charlotte and your family strong throughout this long journey…and for keeping your hearts willing to yield to His Will …no matter how broken they might be. God Bless You!
God is good ALL the time!!! Praise praise praise…
Thank you Dear God. We will keep praying.
Praising God with you and your family. He does answer prayer. So happy for you all. No your sweet little girl can get on with a little bit more normal of a life and hopefully not have to make these trips so often. Or anymore at all!
Renee
Thank yoi Lord. GOD IS GREAT ALL THE TIME.
Love yall
My heart burst with happiness with happiness when I read she was stable! Thinking and praying for precious Charlotte, you and your amazing, strong family daily. Sending our love always! ❤️
My heart is rejoicing with your family!
Love and prayers Chuck and Tami Peter
I am so thrilled to read this news My heart is filled with Joy for your Family. ❤️
PRAISE GOD!!!! He hears our prayers and His will will be done! We rejoice with you and continue to pray for complete healing!
Yay! Such wonderful news to read! Continued prayers that God would sustain you!
My heart is jumping with joy! God is a wonderful God! Praise his name.
Oh my goodness this is BEYOND AMAZING news!! God is good as are you. He is protecting you, He is answering all of our prayers. PRAISE THE LORD!!!
This is such great news !!
Thank you so much for sharing. Loved getting the good news about Charlotte’s scans and bone marrow test. Your fath in God is so amazing. Our prayers have been answered. We have an awesome God who loves us all.
I did a BIG sigh of saddness when I read that there was more. Cried some tear also. Then another BIG sigh of happines that ALL her scans & repots were either stable or clear. God is SOOO GOOD!
Oh my gosh, great news! I will give you a call now that you are home. Hopefully we can get a magical wish going soon!!!
Thank you Father ! You have heard our desperate cries….and You have answered.
I am crying tears of joy5!
Oh praise God! All things are possible through Him. I’m crying while writing this as we pray for her every night and my son always asks me if he’s ever met her. I’ve shown him pictures of her. May God continue to heal her and strengthen her. May He also continue to give you and your family the strength through this trying time.
AMEN !!! So good to hear. Hugs and tears for Charlotte.
Out of the world ! So so happy for you and so encouraged .
Praising God, with tears of joy. Continous prayers for Charlotte’s miraculous healing, God’s Strength and Peace for the whole family, God’s Wisdom for the medical staff and God’s Favor over all. Me Ke Aloha, Donna
Such wonderful an amazing news!! So happy for Charlotte and your whole family. God continues to show Himself and works in miraculous ways. Much love to you, God is so so good!
Your testimony is far reaching. Praising God for this absolute miracle of healing. Keep leaning on His promises.
Wow! Thankyou you for sharing.
I was so blessed to read this! Thank you, Jesus, for answering prayer. Thank you for loving this family and walking close to them. Bless little Charlotte and God bless each member of the family. Praise God!!
Praise the Lord! God is good! Thank you, thank you!
Praise the Lord!!!! God is good and he sees and hears all. I am so happy to hear this truly wonderful news. God Bless you all. 💕💕💕💕Susie Woodard
Wonderful news! The way you started out with this blog, I feared for the worst. But our God is our Rock! He took my cancer away, and now He is working his miracles in Charlotte’s life and providing much needed comfort for her family. Have a safe flight back home to central Oregon, and keep all of us who have been holding you in our prayers with more news like this.
I am left speechless and awed! I feel like I need to pinch myself to make sure this is true….so so excited to read and learn the wonderful news….I have prayed every night and every morning for Charlotte, her family and care givers for the healing power of the Lord to heal Charlotte from her pain and save her from this horrible illness. Will continue to pray for all and her sweet little new friends and families you have all met through the treatments, recovery and testing in New York and Oregon.
xoxo, PK
I am crying with those huge crocodile tears of JOY. Thank you Jesus that you are still in charge and her big miracle is coming to light. I to know those discouraging moments when reality is knocking and you just have to surrender your life and your will to him. But then in the final hour he shows himself to be faithful and just and yes He had it all along. Thank you Lord for answering prayers. We will continue to keep her and your precious family in our prayers.
Bless you all!! Wonderful update!!!
💖 Jacqueline!
Thank you for faithfully updating your blog. God is so good, just as you said.
He is our Rock!
Praise God for this good news. We will continue to pray.
Sitting here bawling, but with tears of joy. Thank you Lord. So where do you go from here. Will she have to keep having the treatments? Or will they just keep checking every few months or years? I can’t imagine all she and your family has been through. God is and will be with you all.
We will continue treatment. Only her bone marrow is clear, which is a huge defeat in itself, it was 100% infiltrated at diagnosis. She still has 6 tumors as well as soft tissue and bone disease… thank you for your continuous support and prayers!
Prayers are so POWERFUL!!!!
In my heart and in my soul I have always believed that God hears those who gather together in prayer…this has been a testament.
God is so good!!!
I am more happy than words can convey.
Praise God!!
Our hearts were heavy, as we read your story, and then a miracle for her and you came forth! Rejoice in the Lord.
Rejoice and Praise!!! God is good and faithful!!
Such wonderful news and yes, God answered many prayers. I have tears in my eyes as I read your wonderful news. So happy for all of you and especially that sweet little girl of yours.
Tears of joy for your latest post from NC. Praise the Lord for his faithfulness! I love the song in your heart.
We are praising God with you and continue to pray for Charlotte and your sweet family each morning. We have shared your blog with several friends who don’t know you, but are faithfully praying and praising God, as well. Blessings…
Praise You Lord!!!
Thank you for sharing. Susie Dowding
From your friend in need, I am a Mom of a 20 year old with Ewings Sarcoma. I am so compelled by your posts and I will continue to pray for miss charlotte. I have such high hopes for her treatment and pray that her journey holds a healing for so many others battling cancer. Stay strong mama bear, our lord will continue to hold you up just as you are holding up sweet charlotte. My daughters treatment is currently going well and her PET scans show no cancer. I still can’t rest, I must continue this fight by her side. Just wanted to let you know I join you in prayer and you are not alone. Keep up the good fight dear Charlotte you are amazing💗. Much love from Nebraska.
Kristen’s mom💗
Hallelujah! Good news and continued prayers! Our God is faithful and we’re trusting for complete healing and health SOON!
Praise to God for his little miracle named Charlotte!
Amen,amen. Thank you Father. Continued prayers. Xxxxxoooo
PRAISE THE LORD! That is awesome news! Keeping you all in my prayers! I love reading your post always!
Such wonderful news! So happy to hear this.
Charlotte and Family,
Your Pediatric Nurses at St. Charles couldn’t be more happier about your news. We saw Grandma and she caught us up to your exciting news. We are overjoyed for you and your family. Yay!!!!! Big hugs and lots of love,
Love, St. Charles Peds Nurses!
Amen sweet Charlotte! May God continue to bless you sweet girl💗
Pediatric Cancer Mommy From Nebraska