I don’t really know where to start. Charlotte finished the antibiotic treatment to get rid of the PJP she was diagnosed with in Philadelphia. I really did not see a change, positive or negative which was a little discouraging.
We had to move on to the next plan of treatment, high dose pulse steroids. This would be three 1 hour infusions over three days. Her first treatment was a planned admittance into the children’s hospital. Because of her bipap machine, she would have to be admitted into the PICU. A week before this plan, Charlotte caught a simple cold as did the rest of our family. It hit her the hardest but she seemed to have finally kicked it and we were able to celebrate her 6th birthday with her classmates. This was previously postponed because of our unexpected stay in Philadelphia, so my hope was to celebrate ASAP
.
The party was a success and Charlotte had so much fun. The week following her party was a rough one. She seemed to be getting worse. We bumped up the steroid treatment and because we missed our appointment time, we had to take her through the emergency department to be admitted. They did a chest X-ray and thought they saw pneumonia. She was quickly transferred to the PICU. They decided to run some additional tests and re evaluate whether she could safely receive high dose steroids. A CT was done and we waited to hear what the next step was.
At the end of March, Charlotte has a chest CT done. It showed her right lung had damage but her left lung was perfectly healthy. This new CT shows that her right lung is much worse and now her left lung is starting to be affected. Her body is attacking her lungs and no one knows why.
With this news, we have been told “you have a very sick little girl” and “I don’t think you realize, it’s very very very very very bad.” My first instinct was to call the experts in Philadelphia. They were waiting for the imaging but were sent some screen shots via email. She told me it was pretty bad. She suggested meeting with palliative care to help us navigate these next moments together.
My thought all along was a lung transplant. Unfortunately, Charlotte needs to be free of cancer for 2 years before being put on the list. Even then, with her age and size, the list and wait is long. Many patients pass before their chance comes.
This has been a low blow to our family. So many WHYS?!! We fought so hard through cancer. Her cancer treatment is finally finished, now this! A side effect, from the awful treatment. THIS is why childhood cancer needs more funding!!
My feelings have been all over the place; Disbelief, anger, sadness, numb and broken.
Charlotte is considered terminal.
There is no “cure” for her condition.
A transplant only has a 50% 5 year survival rate.
With all of this, I have a peace inside of me. A peace that only a mighty God could give me. I don’t know why I do, but I do.
Charlotte has proven science wrong before, our God has been working on her this whole time. Surely, He isn’t done.
The steroids are showing good results so far. She is able to get them every 3-4 weeks as needed. She is coughing less and gets bursts of energy. We are still working on her nutrition and gaining weight for strength and energy. Slowly but surely she is starting to add some pounds.
We have been here before, we have heard there is nothing else we can do. Charlotte has been called an “anomaly” by some of the top doctors because her situation is so rare. I am praying these pulmonologists can say the same thing.
I’m not ready to lose my baby girl, the one who made me a mama first. I look at her eyes, her smile, I hear her laugh, and feel her snuggles. I never want to be without them. I CAN NOT imagine being without them. Her sisters need her, her daddy needs her, I need her! Every night Charlotte asks God to heal her lungs, please ask Him with her.
I need each of you to pray. Pray for Charlottes miracle, we need it.
“For it is the God who commanded light to shine out of darkness, who has shone in our hearts to give the light of the knowledge of the glory of God in the face of Jesus Christ.
Therefore we do not lose heart. Even though our outward man is perishing, yet the inward man is being renewed day by day.”
II Corinthians 4:6, 16 NKJV
Praying for her lungs to heal
I will continue praying 🙏 for sweet Charlotte ‘s miracle and also peace and comfort for all of your family!!
Prayers for you sweet baby girl🙏🏻🙏🏻Pray for your lungs to heal 🙏🏻💕🙏🏻
As i was reading the update on your sweet girl, my tears started flooding. I wont stop praying for her . She is one tough girl, she is a warrior in my eyes. HUGS!!!
I played football with Tyler at Western. I’ve been praying for Charlotte and your family. I have a 19 month old daughter named Raelah and I think of her when I read about Charlotte. I will pray that God will heal her lungs and for strength and good health. God bless you guys. Stay strong and keep the faith.
Lord God please breathe Your breath of life into Charlotte’s lung
“Then the Lord God formed the man from the dust of the ground. He breathed the breath of life into the man’s nostrils, and the man became a living person.”
Genesis 2:7 NLT
In Jesus name we pray
Amen
Prayers for sweet Charlotte
Prayers for your family. Love to you all.
I have never stopped praying for that sweet girl and never will!! Praying for your entire family.
I am praying for strength for all of you in this extremely difficult trial. May you be surrounded by the perfect peace of God that passes understanding.
Praying for peace that passes understanding and Charolette’s miracle
Prayers.
I am praying for you guys! This is heart breaking news but the great Yahweh of all creation, time and space is still in control. Praying for peace and surrender that passes ALL understanding! Love you guys!
Continuing to pray for precious Charlotte for her lungs to heal, the treatment to work, and your family for strength for all you are going through.
Everyday, in our prayers.
I’m continuing the prayers for your beautiful, sweet girl! So very heartbroken right now!
Praying for the Lord to heal Charlotte ‘s lungs and keep her free of cancer.
Praying for your family and Sweet Charlotte. Hugs to all of you.
Prayers for each of you . I must ask this question, are you familiar with St Jude Childrens Hospital? There’s no charge to the family and they do amazing work. Since this all started w/ her cancer maybe that can address all of this .?
Praying for Charlotte and all of your family daily. May you feel Gods arms around you all. Sending lots of love.
What a devastating news report! Our God is bigger than the air we breathe! I believe in miracles and I believe in Charlotte’s miracle! I am praying, in the name of Jesus, that Charlottes lungs be healed and she gains her strength back. Praying for the entire family. ♥️
Continuing to pray for healing for sweet Charlotte, and for your whole family. What a struggle you all have been through!🙏🏻💕
The Stitt Family will be praying for you and your sweet girl.
Debi and I ache with you! Your “we need her” confession tears our hearts! We have been praying and will continue. She is indeed a precious little girl. Blessed with such loving parents! Papa Joe (Lilly’s grandpa)
Praying for sweet Charlotte and the family. May God hold you in the palm of His hands.
We continue to pray for charlottes miracle. 🙏🏻
We are here my friend, sending you so much love. Hoping and fighting with you and Charlotte. Love you!!
Praying for peace, continued strength and healing! This has been such a journey with twists and turns and you all are in my thoughts💜
Praying for your baby girl Charlotte. May God heal the sickness in her lungs and body and restore her to perfect health.
I will continue praying for your sweet baby! May god bless all of you and give you the strength you need!
Been following Charlottes journey since day one and I can tell you that little girl of yours has changed so many lives. She’s such a fighter! And so are you! I will continue to pray for her healing and for peace for you and your family. ❤️
I have been praying for your family for a while now, and I will continue to fight this battle with you, interceed for you, believe for Charlotte’s miracle with you. I am believing and trusting that she is His perfect workmanship, masterpiece, He knows her intermost parts, every hair on that precious head. He adores your babygirl.
Thank you for your witness of faith, trust and grace.
“The LORD will fight for you, you only need to be still” Ex. 14:14
I will continue praying for Your sweet girl and your family. I love you!
Praying for Charlotte! She is a daughter of an awesome God.. 🙏🏻🙏🏻🙏🏻
Praying for Gods will to be done. And for peace and comfort for you all.
Give sweet Charlotte a hug and keep one for yourself 🙏❤️🌹
Prayers for Charlotte Grace, for you, your husband and her sisters, and for your families that wait for her healing. She is tough. And I pray her strength never weakens.
We will continue to pray. I believe in God and His mighty ways and I will pray with supplication that He heals Charlotte’s lungs. We love you, York family.
I lost my little girl Remi Grace from a brain tumor when she was just four months shy of her 3rd birthday. As a mother who has gone through this journey I want to share with you…Do not ever give up hope. Dr’s do not know everything. There is power and prayer. Sending big hugs and prayers for healing and strength.
Praying for this sweet girl! Lots of hugs and kisses!
Sweet mama, you have been through more than any mother should have to endure. I am praying for you and your husband, for strength that you shouldn’t have to have. It’s simply not fair. I am praying for Charlotte’s miracle. And I am praying for Charlotte’s beautiful little sisters.
Your sweet Charlotte is continually in our thoughts and prayers. We are also praying for the Drs and your family 😘 Fully believing in Charlotte’s Miracle ❤️
I’m heartbroken with you and I don’t understand the many ” Why’s” either…I so wish Charlotte nor your family had never had to suffer as you have for so long. I WILL keep praying with Charlotte and with you and your family for her miracle and for God to keep you at peace as you wait with hope in only Him.
I will ask God to send a miracle for Charlotte – she is a beautiful little girl and deserves to get better – I will ask my Nom who I lost 3 yrs ago n my Dad who I lost in Jan to send her the healing powers she needs – in the meantime ” Charlotte honey you must fight with all you have and not give up – my niece is doing the same so sweetie I will pray for you to get well – your a beautiful girl – sending hugs n prayers to get well – all my love n more – linda from Billerica MA xoxo
May God continue to wrap His arms around you all as you continue to walk. Praying for Charlotte’s Miracle. Praying for encouragement and the continued Peace of God.
Praying for her recovery. Praying for her comfort.
Thank you for sharing in such detail. I know writing can be healing. I will continue to pray for Charlotte and your entire family. God has brought you through the storms. Find the pockets of peace that come when you give it all to Jesus and rest in his embrace.
Tears and prayers for your sweet baby girl and your family.
I just learned of your story and Charlotte’s struggle. I do believe in miracles and I pray for God to make those lungs strong, that she keep gaining weight, and that she receive the lung transplant she needs. I can’t imagine how powerless you must feel. So many things in the world like this do not make sense to me. I will include Charlotte and your whole family in my prayers.
Our hearts are breaking for you guys and the pain that little Charlotte has had to endure. We know He is able, and so we will continue to beg Him for Charlotte’s healing on this side of Heaven. Also praying for protection for your hearts and minds as you continue to fight this battle…praying you will feel His strength now more than ever!
Praying for sweet Charlotte’s miracle, for you, your husband and little ones. Much love for all of you. Keep the Faith!
Still praying for your baby to be completely healed in Jesus mighty name <3
You are in our hearts; I will continue to pray for Charlotte’s miracle, and for continued strength and peace for your family. Like so many, we care deeply for your family and little Charlotte. God’s gotta be hearing all that good stuff! Love you lots.
Prayers continue for your sweet baby girl! Prayers continue for strength for you all! Lord please hear our prayers🙏🏻
We are praying for brave little Charlotte. 🙏. And her wonderful and devoted parents. We welcome another miracle. 🤗
Our prayers continue for you and your sweet little angel.
May the Lord bring comfort and a miracle of healing for her lungs
and pour out His blessings to your family.
Peace and love to you…
So many thoughts and prayers being sent from Oregon!
I pray God wraps his unfailing love and arms around your family. Many prayers from North Dakota! My mom (Mary Newman) informed me of this situation, she also is praying.
Tears… I am so sorry you are all going thru this. Prayers for healing and continued peace that transcends all understanding. Hugs. I live in bend, please let me know how I can help.
Have u tried cannabis? I have heard many stories of healing with its use.
The Saints in Heaven are alive, and we can ask them to pray for us, just as we pray for each other. They take our prayers directly to the Lord! They became Saints because they performed 3 miracles from Heaven. Every Saint is a “Patron Saint” of a specific cause. St. Peregrine is the Patron Saint of cancer. Many miracles have been attributed to his intercession. I will be asking St. Peregrine, and Our Blessed Mother, to pray on Charlotte’s behalf and especially to Our Lord as well, to poor His grace upon her and let her stay with us, if it is His will. I believe in miracles!
Many, many prayers going up for you all..
I am praying that your daughter be healed of all of this. Bless your little girl!
ALWAYS, ALWAYS, ALWAYS in my prayers. God has plans that Doctors don’t always know. My brother, at age 20, had cancer..a lesion over his heart and lungs. They opened him to remove it and just biopsied and closed him back up said “it would grow back as we were closing it’s so bad” Heavy Chemo and radiation and finally one night he went to a prayer meeting, they prayed for him and felt he was cured. Quit his treatment. (Which appalled me since I’m a nurse and at that young stage of my life was sure that was the ONLY way to go) My brother continues to be a spiritual person and celebrated his 64 birthday on May 1st. PRAYERS !!!
Sending prayers and love to you Beautiful Charlotte♡
Every Beautiful Child Deserves A Beautiful Life Filled With Wonder And Delight♡
I Know Miracles Exist. I Know You Are Deserving Miracles. ♡
I Love You Beautiful Angel! ♡♡♡♡
“May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.” Romans 15:13
“My grace is sufficient for you, for my power is made perfect in weakness.” Therefore I will boast all the more gladly about my weaknesses, so that Christ’s power may rest on me.” 2 Corinthians 12:9
“Now may the God of peace, who through the blood of the eternal covenant brought back from the dead our Lord Jesus, that great Shepherd of the sheep, equip you with everything good for doing his will, and may he work in us what is pleasing to him, through Jesus Christ, to whom be glory for ever and ever. Amen” Hebrews 13:21
“Now may the Lord of peace himself give you peace at all times and in every way. The Lord be with all of you.” 2 Thessalonians 3:16