As I write this, we are flying home from New York. The past few days have  been a whirlwind. We arrived Monday at 3:00 and rushed to a 4:15 appointment. Within 15 minutes of sitting down and talking to the doctor, we were informed that coverage for surgery and treatment was DENIED!! My heart sank, […]

On Monday, we will be taking Charlotte to New York, to Memorial Sloan Kettering hospital. We will be seeing doctors that eat, sleep, and breathe Neuroblastoma. When our oncologist made me feel hopeless, our new doctor told me not to lose hope. She said “This is what we do, this is why people come to […]

I know many of you are patiently waiting for results of Charlottes recent scans. I thank you for that. We had two full days of running all over OHSU getting tests, scans, injections, blood draws, multiple sedations, etc. it was exhausting but we got it done!! Our oncologist informed us he would be off on […]