Charlotte finished off her 9th round of hu3f8 on Friday. She has lots of pain with high blood pressure and minimal sleep. Since January 2nd, Charlotte has had a cough. When we arrived to the hospital on Monday, they swabbed her and we learned she had Parainfluenza and Coronavirus. Unfortunately, these are both viruses that […]

Charlotte’s 8th round is finished! 8 rounds, we feel like pros at this, but EVERY SINGLE round of treatment is different. It brings on different side effects, different areas of pain, different lingering affects. Antibody/Immunotherapy, turns on all of the nerves in Charlotte’s body to fight the cancer. To relieve some of the pain she […]

I have sat down multiple times to write this post. At first, it was not easy. Charlotte started her scans with a CT on Monday, then MIBG and bone marrow biopsy on Tuesday, followed by a flight home. Monday night Charlotte’s oncologist called me to tell me the CT showed two new spots near her […]